Current external research collaborations
1.The Prognosis in Palliative care Study II (PiPS2)
Professor Paddy Stone, Marie Curie palliative care research department, University College London
Doctors’ and nurses’ estimates about how long patients with advanced cancer have left to live are not very accurate. Determining more accurately how long these patients have left to live would enable both the patients and their relatives to make plans for their future. It would also enable doctors to target treatments to those patients most likely to benefit and it would safeguard other patients from receiving treatments that they are unlikely to benefit from. It would also allow both patients and their doctors to make more informed choices about the best place to receive their care.
Previous studies have attempted to improve upon or replace clinician estimates of survival. However, these attempts were not completely accurate. . The Prognosis in Palliative care Scales (PiPS) were developed in order to provide an objective aid to clinicians’ intuition. The PiPS scores are designed to categorise patients into three prognostic groups; those with survival of “days”, “weeks” or “months”. Before recommending PiPS for routine use it is important to check that the scores are accurate and reliable. The aim of our study is to check that PiPS is accurate on a large number of patients across the UK and to compare its accuracy against clinicians’ survival estimates.
2. Prospective observational study of cancer patients and their carers views on end of life care
Andrew Davies, Consultant in Palliative Medicine, Royal Surrey NHS Trust
The aim of the study is to evaluate the end of life care preferences of patients with advanced / metastatic malignancy and their carers. The primary objective of the study is to determine the relative importance of preferred place of death to patients with advanced / metastatic malignancy and their carers.
3. Developing a Measure of Psychological Resilience
Antonio Pangallo, PhD student and Lecturer in Organisational Psychology/PhD Researcher, City University
The aim of the study is to develop a measure of psychological resilience and a preventative tool to help address the high levels of burnout in people working in high intensity occupations.
4. Art therapy – based organisational consultancy with staff in health and social care
Val Huet, PhD student and Chief Executive Officer, British Association of Art Therapists.
The aim of the study is to develop an understanding of the processes within art therapy based groups with staff and to examine whether these processes have an effect on levels of work related stress amongst participants.
5. LEGACY: The Breakthrough LEGACY Study for Secondary Breast Cancer
Peter Barry, Consultant Oncoplastic Breast Surgeon, Royal Marsden NHS Foundation Trust
Studying the tissues and organs of patients who have recently died of breast cancer could revolutionise our understanding and inform effective new treatments. Treatment of breast cancer has traditionally been based on the primary tumour in the breast. Little research to date has focused on the process of the spread of disease to other sites. The aim of this study is to comprehensively and systematically examine advanced breast cancer tissue of women who have recently died in a respectful and sensitive way.
6. HIDDen (Hospice Inpatient Deep vein thrombosis Detection study)
Prof Miriam Johnson, Professor of Palliative Medicine, Centre for Health & Population Sciences Hull York Medical School.
The primary aim of this study is to establish the prevalence of proximal lower limb deep vein thrombosis (DVT) and its associated symptoms in a population of consecutive patients with cancer admitted to specialist palliative care units (SPCUs). The secondary aims are to establish the incidence of proximal lower limb DVT during SPCU admission in people with cancer and other conditions, the associated symptoms, the effect of thromboprophylaxis on the development of proximal lower limb DVTs, and the clinical utility of a commonly used clinical risk score for DVT (Well’s score) in this population.
Current internal research
What services influence the care of people with dementia in the last year of life?
A retrospective exploratory study using a mixed methods approach; review of medical notes of decedent patients and interviews with their bereaved relatives, to understand more about the everyday life of people with dementia in their last year of life and consider the role of specialist palliative care. this study is in partnership with Epsom and St Helier NHS Trust and Kingston Hospitals NHS Foundation Trust.
Can a palliative care education intervention improve and sustain participants’ confidence and professional development in palliative care?
Jennifer Todd, Consultant in Palliative medicine and Liz Reed, Research Lead, Princess Alice Hospice.
The aim of this study is to evaluate the impact of the ECEPC on candidates’ confidence in palliative care, determine if this is sustained over time and establish if learning from the course influences professional growth and translation of learning and experience to patient care.
Join Dementia Research
Join Dementia Research (JDR) is a nationwide service that helps anyone in the UK find and take part in vital dementia research studies. People with dementia, their carers, and anyone interested in research can sign up. It’s also possible to register on behalf of someone else.
Why is it needed?
It is only through research that we can develop effective treatments, improve care and one day find a cure.If you are looking for studies to take part in, but don’t know where to find them, please visit http://www.joindementiaresearch.nihr.ac.uk
All Hospice generated research studies will have meaningful user involvement as part of the project steering group. We would also expect those wishing to undertake research with us to have considered user involvement as a part of their project.
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